CF Education Day 2012
“CF Bag of Tricks”
Guest Speaker: Ronnie Sharpe
Our guest speaker, Ronnie Sharpe is a graduate of the University of Arizona with a degree in psychology. He has founded CysticLife, an organization which aims to positively impact the lives of the CF community. He has spoken nationally at CF Education Days, and is known for his inspiring talks for persons with CF and caregivers. Diagnosed with CF at 6 months ofage, he considers his life a blessing and lives to be a blessing to others.
Ronnie is the creator of RunSickboyRun.com, an inspiring blog describing the life experiences of an adult with cystic fibrosis (CF). Mr. Sharpe hopes his blog shows other individuals with CF and their families that through a commitment to treatments and exercise we can all be the best version of ourselves.
7:45 am - 8:30 am: Registration / Continental Breakfast & Visit with Guest Vendors/FAB
8:30 am - 8:35 am: Welcome
8:35 am - 9:00 am: Review of our Center’s Outcome Data (Dr. Daniel Weiner)
9:05 am - 9:20 am: Maximizing Nutritional Health (Kristen Roberts, RD)
9:25 am - 9:40 am: Strategically Working the Insurance Maze (Mary Erny, LSW and Renee Stuebgen, LSW)
9:40 am - 10:25 am: Research Update (Dr. David Orenstein)
10:25 am - 10:35 am: Research from a Patient’s Perspective (Megan Cuda)
10:35 am - 11:05 am: Break and Visit with Guest Vendors/FAB
11:05 am - 12:15 pm: “Cystic Fibrosis: Bag of Tricks” Ronnie Sharpe - Guest Speaker